A Gift Of Time: Continuing Your Pregnancy When Your Baby's Life Is Expected To Be Brief Download Free (EPUB, PDF)
A Gift of Time is a gentle and practical guide for parents who decide to continue their pregnancy knowing that their baby's life will be brief. When prenatal testing reveals that an unborn child is expected to die before or shortly after birth, some parents will choose to proceed with the pregnancy and to welcome their child into the world. With compassion and support, A Gift of Time walks them step-by-step through this challenging and emotional experience―from the infant's life-limiting prenatal diagnosis and the decision to have the baby to coping with the pregnancy and making plans for the baby’s birth and death. A Gift of Time also offers inspiration and reassurance through the memories of numerous parents who have loved a child who did not survive. Their moving experiences are stories of grief―and of hope. Their anguish over the prenatal diagnosis turns to joy and love during the birth of their child and to gratitude and peace when reflecting on their baby’s short life.Full of practical suggestions for parents and for caregivers, A Gift of Time also features the innovative concept of perinatal hospice and palliative care. Caring and thoughtful, the book helps parents embrace the extraordinary time they will have with their child.
Paperback: 408 pages
Publisher: Johns Hopkins University Press; 1 edition (January 12, 2011)
Language: English
ISBN-10: 0801897629
ISBN-13: 978-0801897627
Product Dimensions: 6 x 1 x 9 inches
Shipping Weight: 1.2 pounds (View shipping rates and policies)
Average Customer Review: 5.0 out of 5 stars See all reviews (27 customer reviews)
Best Sellers Rank: #150,632 in Books (See Top 100 in Books) #74 in Books > Textbooks > Medicine & Health Sciences > Administration & Policy > Ethics #115 in Books > Medical Books > Medicine > Medical Ethics #184 in Books > Textbooks > Medicine & Health Sciences > Medicine > Clinical > Pediatrics
I truly don't know where I'd be without the wisdom and guidance found in this book following our fatal prenatal diagnosis. I wasn't ready for the books about life after loss - I still had my daughter and wasn't willing (or able) to "go there." This book taught me how to embrace every second and ensure we had the most meaningful experience with our daughter that we possibly could. It gently educated us on the decisions we needed to make and because of that, we have no regrets.From diagnosis to burial, this book was with me at all times. It provided a sense of comfort and knowledge that I simply couldn't be without. Thank you Amy and Deborah for this life-changing resource.
I read this while pregnant with my daughter who had a fatal disease. Invaluable, validating, gentle and encompassing multiple perspectives. Such a treasure for someone going through something like that, its hard to know what to do or where to turn. This book has great insight.
This book is a must have for those who are carrying to term despite a poor or fatal diagnosis with their unborn child. I wish I had this book while I was pregnant as it has so much helpful information for the different stages in the pregnancy and beyond. I read this book after I lost my daughter and it brought me to tears remembering my time with her. I know this book will be helpful to anyone who needs it.
This is a beautiful book for those struggling with a baby that was given a terminal diagnosis. My baby was diagnosed with trisomy 13 at 20 weeks gestation. It gives such heartfelt, honest advice from a collective group of parents. Their stories help guide you through this journey and let you know that you are not alone! I will keep this book for forever!
I bought this book in paperback and Kindle form for my daughter and myself when we found out her baby was not going to survive. It was a definite eye opener. We both cried through the whole book. But knowing that others had gone through the same thing before us in a strange way was helpful. There were so many things in this book that helped us in so many ways. Too many to go into in this review. Just knowing all the options we had to choose from made this experience a little easier for us to deal with.We had nowilaymedowntosleep.org come in to take pictures. Scott Thomas was such a blessing! This book was also a blessing. Thank you to all those who helped put this book together for all of us!
This beautiful book tells the stories of mothers and fathers who were transformed by their love to their child; even if their child only lived a few minutes.This is a very touching book. Highly recommended to every person who likes to develop himself / herself reading books. It is a must read for expecting parents of children with life limiting malformations. It is a must read too for the family members and friends of these parents. One of the most moving books I ever read. Five stars.
A Gift of Time is, indeed, a gift to all who are continuing a pregnancy or caring for someone in this challenging situation. The stories are the heart of the book; so many perspectives, suggestions, regrets, and lessons are shared. We made this a required book on our well-crafted booklist for our Baby Loss Doulas at LossDoulasInternational.com When these parent advocates/companions reach out to help families whose babies will die, they need Amy and Debbie's advice and the wise stories within the book, to help them learn how to give support, guidance and help with creating their Birth Plan or Vision. A Gift of Time helps ease the burden of how to plan for and meet special babies who are destined to die. There is no point in reinventing wheels, why not start with what others have done and work from there when one is heading toward such deep and important decisions? One of the resources that can in turn help with Birth Planning and the decisions ahead, is the book Empty Arms: Coping with Miscarriage, Stillbirth, and Infant Death. It is a gentle, practical, self-help guide to the hospital time and beyond. Empty Arms: Coping After Miscarriage, Stillbirth and Infant Death. Sherokee Ilse
I've had this book for months and unable to come up with a good review because it's just wonderful in a very horrible way.Carrying to term is so difficult and this book helps you accept your pregnancy for what it is - the gift of time with your baby who will die.I despise ever needing this book, but it was great to have read and I plan to buy copies to donate.I also recommend other books by these two wonderful ladies. "Empty Cradle, Broken Heart" and "Loving and Letting Go" both by Deborah Davis and "Waiting with Gabriel" by Amy Keubelbeck. I've gone through different types of losses of a baby: unexplained miscarriage, an unexplained Stillbirth at 28 weeks, and a 4 day old (who was the one we carried to term with fatal heart defects and an eventually fatal seizure disorder) so I have read just about every book about grieving a baby there is and these are some of my favorites, especially about carrying to term and deciding against major medical interventions to spare our children any unnecessary suffering.If you are still trying to decide whether you want to carry to term or terminate due to medical reasons, there is a book called "Our Heartbreaking Choices" by Christie Brooks (I "met" the author online and she's a wonderful woman) - this book goes through 46 families who decided to terminate, their reasons, their feelings, etc. It's such a difficult decision and neither choice is ideal - you're choosing between awful and horrible and no matter what, all decisions are made out of pure love for our babies. I don't regret for one second carrying to term, but I know it's not for everyone, so I wanted to mention that book too.
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